This is Penny! Penny is a pediatric hero with fibular hemimelia. Fibular hemimelia is a rare disorder that occurs in only 1 in 40,000 births where part or all of the fibular bone is missing. It was a difficult decision on what to do with Penny’s leg but the family ultimately decided to amputate it, “... to give her the best conditions to live a life without pain and limitations”, as told by Penny’s mom, Angelica. A brave and hard decision to make but Penny is sporting her cute and colorful cast with a smile on her face! Penny is able to engage in activities and continue on with her life without limitations! Penny meets with other kids who have had amputations and shows them that they have a friend in this. Our pediatric heroes show that despite a battle they may be fighting or have overcome, it doesn’t have to stop you from living your life and doing so with a smile! Thank you Penny and family for allowing us to share your great story and inspire others.
Meet Kingston! This brave little pediatric hero entered the world on July 24th, 2019 weighing 1 pound and 13 ounces. Kingston was born as a preemie, which is a premature birth that occurs in roughly 11 - 13% of pregnancies in the US. His family went through an emotional rollercoaster when he entered the world; from being hooked up to several machines and trying to win this battle, Kingston showed strength as he grew and continued fighting! Kingston is still smiling and fighting today with lung difficulties and needing a Trach, but nonetheless, he is here. He is living. He is breathing. He is a gift! A mother always has a special bond with her child, however, what is so special about the relationship that Kingston’s mom, Angie, and him share, is that Angie was a preemie baby as well. Everyday since Kingston’s birth to now, 307 days later, Angie has posted updates on her instagram @angelic.beauty. From the triumphs to the hardships, she put it all out there with full transparency and we commend Angie for that! It isn’t easy - many people showcase the good on social media but that’s not reality. Reality is that pediatric complications are difficult. Sometimes parents of the heroes can feel helpless, lost, confused… it is inspiring to read and share stories showcasing these pediatric hero’s battles. It is important to bring awareness to all pediatric heroes! We applaud you Angie! We cannot imagine the strength you have but we commend you for keeping faith the whole step of the way!
Meet Briella and her sweet puppy Mieka! Briella is a Cerebral Palsy WARRIOR. Cerebral Palsy is a disorder that occurs in the early stages of life and affects muscle tone, movement, and motor skills. What is shown through the pictures of Briella, is the idea of “CAN”! She CAN do a multitude of things regardless of Cerebral Palsy, and she does it with a smile on her face! Thank you Briella for being an inspiring voice to other heroes who also have Cerebral Palsy!
We celebrate rare diseases and disorders every day. Here is a shout out to some of our heroes we’ve had the privilege of featuring on our page. We are rooting for you and have you in our hearts every day.
“My name is Fatima, I would like to share my story of resilience. After years of hoping to have a child naturally my husband Jaycee and I decided to finally seek out for help. Unfortunately at the young age of 26, I was diagnosed with low ovarian reserve, basically, I have low egg supply and only had a 5% chance of natural conception. This news devastated us and the only option to have a child naturally would be through In vitro fertilization (IVF) with only a 50 percent chance of success. After many tears and prayers later we decided to take that risk and try IVF and with the grace of God and science, we welcomed my son Cristiano at 4lb 14oz born 10-14-2014 who’s is currently 4! I can’t imagine my life without him. He completes our family. We are so lucky and blessed to have our little dude.” An amazing story of resilience told by @fatimamagg! We hope to inspire and encourage all of those who are battling any type of battle! Fenrici salutes your amazing perseverance and bravery!