This little pediatric hero is Jackson! Jackson was born in March and was diagnosed before birth with, “ … a unique mutation on the COL1A1 gene which pointed to Osteogenesis Imperfecta” (www.andthestorybegins.com - Jackso’s mother’s blog). Osteogenesis Imperfecta are genetic disorders that mainly affect the bones making them more prone to fracture. OI occurs in approximately 1 in 20,000 individuals and can be diagnosed after the birth. Fast forward to Jackson’s birth - he was delivered by c-section and was reported to be stable and breathing well on oxygen. Jackson was a miracle baby… and delivered in the midst of a pandemic! A lot of faith and hope goes into pregnancy, especially when things don’t always go as planned. Abby and her family remained hopeful and took Jackson’s pediatric battle by storm. We are very thankful that Jackson was able to be delivered safely and is continuing to be a pediatric hero! We hope this story can inspire other moms experiencing pregnancy right now during CoVid as well as moms who may have pediatric battles. Fenrici is praying for the safety of our pediatric heroes, and we appreciate you! Thank you Abby for allowing us to share Jackson’s story. Read more stories like Jackson's at our Amazon Store Hero Page: https://amzn.to/31onwhm
Meet Kingston! This brave little pediatric hero entered the world on July 24th, 2019 weighing 1 pound and 13 ounces. Kingston was born as a preemie, which is a premature birth that occurs in roughly 11 - 13% of pregnancies in the US. His family went through an emotional rollercoaster when he entered the world; from being hooked up to several machines and trying to win this battle, Kingston showed strength as he grew and continued fighting! Kingston is still smiling and fighting today with lung difficulties and needing a Trach, but nonetheless, he is here. He is living. He is breathing. He is a gift! A mother always has a special bond with her child, however, what is so special about the relationship that Kingston’s mom, Angie, and him share, is that Angie was a preemie baby as well. Everyday since Kingston’s birth to now, 307 days later, Angie has posted updates on her instagram @angelic.beauty. From the triumphs to the hardships, she put it all out there with full transparency and we commend Angie for that! It isn’t easy - many people showcase the good on social media but that’s not reality. Reality is that pediatric complications are difficult. Sometimes parents of the heroes can feel helpless, lost, confused… it is inspiring to read and share stories showcasing these pediatric hero’s battles. It is important to bring awareness to all pediatric heroes! We applaud you Angie! We cannot imagine the strength you have but we commend you for keeping faith the whole step of the way!