This little pediatric hero is Jackson! Jackson was born in March and was diagnosed before birth with, “ … a unique mutation on the COL1A1 gene which pointed to Osteogenesis Imperfecta” (www.andthestorybegins.com - Jackson’s mother’s blog). Osteogenesis Imperfecta are genetic disorders that mainly affect the bones making them more prone to fracture. OI occurs in approximately 1 in 20,000 individuals and can be diagnosed after the birth. Fast forward to Jackson’s birth - he was delivered by c-section and was reported to be stable and breathing well on oxygen. Jackson was a miracle baby… and delivered in the midst of a pandemic! A lot of faith and hope goes into pregnancy, especially when things don’t always go as planned. Abby and her family remained hopeful and took Jackson’s pediatric battle by storm. We are very thankful that Jackson was able to be delivered safely and is continuing to be a pediatric hero! We hope this story can inspire other moms experiencing pregnancy right now during CoVid as well as moms who may have pediatric battles. Fenrici is praying for the safety of our pediatric heroes, and we appreciate you! Thank you Abby for allowing us to share Jackson’s story. Read more stories like Jackson's at our Amazon Store Hero Page: https://amzn.to/31onwhm
This handsome boy is Exton, or as Exton’s mom calls him, “homie with an extra chromie”, welcomed into this world February 28th, 2017! Shortly after Exton was born, he had to get a NG (Nasogastric) tube which he had for a bit as he refused a bottle. Between potential fluid in his lungs, open heart surgery at a few months old, several moves to the CCU and more, Exton finally made it home August 16th, 2017! Exton has been a brave warrior since birth to now, including going to the Children’s Hospital of Alabama in 2019 for some sickness but he came back strong and is doing well!
There have been ups and downs, as there are with any pediatric hero, but it is clear how loved Exton is and how much he loves his family. Exton’s page, @extra_exton is filled with photos of Exton smiling ear to ear, but also real and vulnerable moments. We thank Exton’s mom for allowing us to share a small glimpse into who Exton is and we encourage you to find out more! Exton’s page is sure to bring a smile to your face and love to your heart.