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“My name is Fatima, I would like to share my story of resilience. After years of hoping to have a child naturally my husband Jaycee and I decided t...
Posted in
#BackToSchool,
#BeKindAlways,
#CareAboutRare,
#DadApproved,
#DoWhatYouLove,
#EveryDayIsAGift,
#FindACure,
#GiveBack,
#Heroes,
#InspiringStory,
#LetNothingStopYou,
#LoveLife,
#MomApproved,
#OvercomeStruggle,
#PediatricRareDisease,
#PhotoOfTheDay,
#PositiveThoughts,
#Rare,
#RareDiseases,
#Survivors
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“From a fairytale family to losing three brothers to a rare disease, maternal advocate @cristololoughlin draws on personal tragedy to ease the suff...
Posted in
#2019GGSummit,
#angelaid,
#angelaidcares,
#CareAboutRare,
#caregivers,
#globalgenes,
#patientadvocacy,
#raredisease,
#RareDiseases,
#selfcare,
#TEDxLuxembourgCity,
#womenempoweringwomen
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Words from @melissac3233 about what resilience means to her family and their daughter Autumn! “@fenrici donates a portion of proceeds towards rare ...
Posted in
#BeKindAlways,
#CareAboutRare,
#careforrare,
#DadApproved,
#DoWhatYouLove,
#EveryDayIsAGift,
#fenricicare,
#FindACure,
#GiveBack,
#globalgenes,
#Heroes,
#InspiringStory,
#LetNothingStopYou,
#LoveLife,
#MomApproved,
#OvercomeStruggle,
#PediatricRareDisease,
#PhotoOfTheDay,
#PositiveThoughts,
#Rare,
#raredisease,
#RareDiseases,
#selfcare,
#Survivors
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This sweet, smiley girl is Lily! But don’t let the smile and bravery fool you - this little girl has been fighting a battle since the day she was b...
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This little pediatric rare cancer hero is Evan! Evan was diagnosed with high risk neuroblastoma in January of 2017. Three months after diagnosis, E...
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Meet 14 year old Mason and 11 year old Sadie, each individual in their own interests and hobbies! However, they do share a progressive, degenerativ...
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“Resilience is overcoming the odds stacked against you. Hearing “no”, pushing through, and coming out stronger on the other side. ❤️”- words of res...
Posted in
#CareAboutRare,
#DadApproved,
#DoWhatYouLove,
#EveryDayIsAGift,
#FindACure,
#GiveBack,
#globalgenes,
#Heroes,
#InspiringStory,
#LetNothingStopYou,
#LoveLife,
#MomApproved,
#OvercomeStruggle,
#PediatricRareDisease,
#PhotoOfTheDay,
#PositiveThoughts,
#Rare,
#raredisease,
#RareDiseases,
#selfcare
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“Ali is the definition of resilience. She picks herself up and smiles through the hard because she is able to focus on all the good in the midst of...
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“Resilience is strength, no matter what obstacles try to stand in your way, you push through them no matter how difficult they may seem. In the end...
Posted in
#BeKindAlways,
#CareAboutRare,
#careforrare,
#DadApproved,
#DoWhatYouLove,
#EveryDayIsAGift,
#fenricicare,
#FindACure,
#GiveBack,
#globalgenes,
#Heroes,
#InspiringStory,
#LetNothingStopYou,
#LoveLife,
#MomApproved,
#OvercomeStruggle,
#PediatricRareDisease,
#PhotoOfTheDay,
#PositiveThoughts,
#Rare,
#raredisease,
#RareDiseases,
#selfcare,
#Survivors
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This is Pinky, who is from the Philippines, grew up in Dubai, and now resides in Brasil with her husband! She is a Jiu Jitsu enthusiast and Behcet ...
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"In believable, achievable, and understandable ways, his messages remind us that hope is real, that peace is possible, and that life is worthy" 13...
Posted in
#BeKindAlways,
#CareAboutRare,
#DadApproved,
#DoWhatYouLove,
#EveryDayIsAGift,
#FindACure,
#GiveBack,
#globalgenes,
#Heroes,
#InspiringStory,
#LetNothingStopYou,
#LoveLife,
#MomApproved,
#OvercomeStruggle,
#PediatricRareDisease,
#PhotoOfTheDay,
#PositiveThoughts,
#Rare,
#raredisease,
#RareDiseases,
#selfcare
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This is Lucy! Lucy has Spinal Muscular Atrophy Type 1. When she was four months old - some signs started to arise about lack of muscular strength w...
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