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by Kristi Treder
“My name is Fatima, I would like to share my story of resilience. After years of hoping to have a child naturally my husband Jaycee and I decided t...
Posted in
#BackToSchool,
#BeKindAlways,
#CareAboutRare,
#DadApproved,
#DoWhatYouLove,
#EveryDayIsAGift,
#FindACure,
#GiveBack,
#Heroes,
#InspiringStory,
#LetNothingStopYou,
#LoveLife,
#MomApproved,
#OvercomeStruggle,
#PediatricRareDisease,
#PhotoOfTheDay,
#PositiveThoughts,
#Rare,
#RareDiseases,
#Survivors
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by Kristi Treder
“From a fairytale family to losing three brothers to a rare disease, maternal advocate @cristololoughlin draws on personal tragedy to ease the suff...
Posted in
#2019GGSummit,
#angelaid,
#angelaidcares,
#CareAboutRare,
#caregivers,
#globalgenes,
#patientadvocacy,
#raredisease,
#RareDiseases,
#selfcare,
#TEDxLuxembourgCity,
#womenempoweringwomen
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by Kristi Treder
Words from @melissac3233 about what resilience means to her family and their daughter Autumn! “@fenrici donates a portion of proceeds towards rare ...
Posted in
#BeKindAlways,
#CareAboutRare,
#careforrare,
#DadApproved,
#DoWhatYouLove,
#EveryDayIsAGift,
#fenricicare,
#FindACure,
#GiveBack,
#globalgenes,
#Heroes,
#InspiringStory,
#LetNothingStopYou,
#LoveLife,
#MomApproved,
#OvercomeStruggle,
#PediatricRareDisease,
#PhotoOfTheDay,
#PositiveThoughts,
#Rare,
#raredisease,
#RareDiseases,
#selfcare,
#Survivors
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by Michael Zhang
This sweet, smiley girl is Lily! But don’t let the smile and bravery fool you - this little girl has been fighting a battle since the day she was b...
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by Michael Zhang
This little pediatric rare cancer hero is Evan! Evan was diagnosed with high risk neuroblastoma in January of 2017. Three months after diagnosis, E...
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by Michael Zhang
Meet 14 year old Mason and 11 year old Sadie, each individual in their own interests and hobbies! However, they do share a progressive, degenerativ...
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by Kristi Treder
“Resilience is overcoming the odds stacked against you. Hearing “no”, pushing through, and coming out stronger on the other side. ❤️”- words of res...
Posted in
#CareAboutRare,
#DadApproved,
#DoWhatYouLove,
#EveryDayIsAGift,
#FindACure,
#GiveBack,
#globalgenes,
#Heroes,
#InspiringStory,
#LetNothingStopYou,
#LoveLife,
#MomApproved,
#OvercomeStruggle,
#PediatricRareDisease,
#PhotoOfTheDay,
#PositiveThoughts,
#Rare,
#raredisease,
#RareDiseases,
#selfcare
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by Kristi Treder
“Ali is the definition of resilience. She picks herself up and smiles through the hard because she is able to focus on all the good in the midst of...
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by Kristi Treder
“Resilience is strength, no matter what obstacles try to stand in your way, you push through them no matter how difficult they may seem. In the end...
Posted in
#BeKindAlways,
#CareAboutRare,
#careforrare,
#DadApproved,
#DoWhatYouLove,
#EveryDayIsAGift,
#fenricicare,
#FindACure,
#GiveBack,
#globalgenes,
#Heroes,
#InspiringStory,
#LetNothingStopYou,
#LoveLife,
#MomApproved,
#OvercomeStruggle,
#PediatricRareDisease,
#PhotoOfTheDay,
#PositiveThoughts,
#Rare,
#raredisease,
#RareDiseases,
#selfcare,
#Survivors
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by Michael Zhang
This is Pinky, who is from the Philippines, grew up in Dubai, and now resides in Brasil with her husband! She is a Jiu Jitsu enthusiast and Behcet ...
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by Kristi Treder
"In believable, achievable, and understandable ways, his messages remind us that hope is real, that peace is possible, and that life is worthy" 13...
Posted in
#BeKindAlways,
#CareAboutRare,
#DadApproved,
#DoWhatYouLove,
#EveryDayIsAGift,
#FindACure,
#GiveBack,
#globalgenes,
#Heroes,
#InspiringStory,
#LetNothingStopYou,
#LoveLife,
#MomApproved,
#OvercomeStruggle,
#PediatricRareDisease,
#PhotoOfTheDay,
#PositiveThoughts,
#Rare,
#raredisease,
#RareDiseases,
#selfcare
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by Michael Zhang
This is Lucy! Lucy has Spinal Muscular Atrophy Type 1. When she was four months old - some signs started to arise about lack of muscular strength w...
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