Heroes Who Inspire All of Us - Fenrici Blogs
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Hero Ellie - B Cell ALL (Leukemia)
Meet Ellie! This smiley girl is 10 years old and a pediatric hero! Ellie is currently fighting B Cell ALL (leukemia). B Cell ALL is Cancer of the ... -
Nicholas - TAR Pediatric Hero
Meet Nicholas! Nicholas was born with TAR - which as his mom says, “affects his limbs, not his sweet fun personality.” Nicholas is prided on his re... -
Asher - HLHS Pediatric Hero
Pediatric hero Asher was born in March of 2019. Asher was born with HLHS, Hypoplastic Left Heart Syndrome which is a birth defect that affects norm... -
Jackson - Osteogenesis Imperfecta Pediatric Hero!
This little pediatric hero is Jackson! Jackson was born in March and was diagnosed before birth with, “ … a unique mutation on the COL1A1 gene whic... -
Garrin - Trach Pediatric Hero!
Meet pediatric hero, Garrin! When Garrin was born, he spent five months in the NICU. Garrin was admitted to a Children’s Hospital and Medical Cente... -
Penny - Pediatric Hero with Fibular Hemimelia
This is Penny! Penny is a pediatric hero with fibular hemimelia. Fibular hemimelia is a rare disorder that occurs in only 1 in 40,000 births where ... -
Kingston - Preemie Hero!
Meet Kingston! This brave little pediatric hero entered the world on July 24th, 2019 weighing 1 pound and 13 ounces. Kingston was born as a preemie... -
Briella is a Cerebral Palsy WARRIOR
Meet Briella and her sweet puppy Mieka! Briella is a Cerebral Palsy WARRIOR. Cerebral Palsy is a disorder that occurs in the early stages of life a... -
Heros
We celebrate rare diseases and disorders every day. Here is a shout out to some of our heroes we’ve had the privilege of featuring on our page. We ... -
Fenrici Story of Resilience: Fatima Has Success With IVF
“My name is Fatima, I would like to share my story of resilience. After years of hoping to have a child naturally my husband Jaycee and I decided t... -
Angel Aid Offers Support for Caretakers of Rare Diseases
“From a fairytale family to losing three brothers to a rare disease, maternal advocate @cristololoughlin draws on personal tragedy to ease the suff... -
Resilience Means.... From Pediatric Rare Disease Hero, Autumn, and Her Family
Words from @melissac3233 about what resilience means to her family and their daughter Autumn! “@fenrici donates a portion of proceeds towards rare ...
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