Fenrici is sharing another inspiring hero story, and in honor of Dwarfism Awareness Month, meet Eden! We reached out to Eden’s mom, Missy, asking if we could share Eden’s story, and she shared with us an amazing and inspiring story. Sometimes with stories, we summarize them from the heroes’ blogs or posts - we were very fortunate to have this story shared with us directly, from Eden’s mom! Read more about Eden below!
“Eden Olivia was diagnosed with achondroplasia at 5 months of age. Achondroplasia is the most common type of short-limbed dwarfism. I dealt with Eden's diagnosis in silence at first. Not because I was ashamed ...I could not love this child more. It was mainly because I had to educate myself on all of the newness surrounding us before I could deal with questions and unwanted sympathy from others. "Oh I'm sorry" or "it could be worse" or ..."she's just small that's all ...I'm short too." Some people don't know what to say. I needed to be prepared for that. I'm sure most intentions were good ...even when they were not.
Most of all I wanted to focus on Eden and all the adjustments and medical attention she needed. I just wish I knew then …what I know now. I also wish the attending doctors were more informed about Achondroplasia. We would have different results with some of her medical concerns to date. Those doctors also scared the heck out of me with what they assumed they knew of achondroplasia, [when in fact] every case is different. Here we are 5 years later ...still learning ...but better for it.
Eden is simply amazing. She is enjoying life conquering the possibilities in a world that wasn’t built for her. I [hope for] more inclusion, awareness and acceptance for those with dwarfism. 💚💚💚 #dwarfismawareness #dwarfismawarenessmonth 💚💚💚”