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This little pediatric hero is Jackson! Jackson was born in March and was diagnosed before birth with, “ … a unique mutation on the COL1A1 gene whic...
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#AmazonDeals,
#BackToSchool,
#BeKindAlways,
#CareAboutRare,
#careforrare,
#DadApproved,
#DoWhatYouLove,
#encouraged,
#EveryDayIsAGift,
#Fenrici,
#fenricicare,
#FindACure,
#GiveBack,
#globalgenes,
#Heroes,
#InspiringStory,
#LetNothingStopYou,
#LoveLife,
#MomApproved,
#osteogenesisimperfecta #pandemicpregnancy #covid19,
#OvercomeStruggle,
#PediatricRareDisease,
#PositiveThoughts,
#Survivors,
#WhyWeRare,
childhero,
hero
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Meet pediatric hero, Garrin! When Garrin was born, he spent five months in the NICU. Garrin was admitted to a Children’s Hospital and Medical Cente...
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#BeKindAlways,
#CareAboutRare,
#careforrare,
#DadApproved,
#DoWhatYouLove,
#EveryDayIsAGift,
#fenricicare,
#FindACure,
#GiveBack,
#globalgenes,
#Heroes,
#InspiringStory,
#LetNothingStopYou,
#LoveLife,
#MomApproved,
#OvercomeStruggle,
#PediatricRareDisease,
#PhotoOfTheDay,
#PositiveThoughts,
#Rare,
#raredisease,
#RareDiseases,
#selfcare,
#Survivors,
#trach,
#trachbaby,
#trachlife,
#WhyWeRare
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This is Penny! Penny is a pediatric hero with fibular hemimelia. Fibular hemimelia is a rare disorder that occurs in only 1 in 40,000 births where ...
Posted in
#BeKindAlways,
#CareAboutRare,
#careforrare,
#DadApproved,
#DoWhatYouLove,
#EveryDayIsAGift,
#fenricicare,
#FindACure,
#GiveBack,
#globalgenes,
#Heroes,
#InspiringStory,
#LetNothingStopYou,
#LoveLife,
#MomApproved,
#OvercomeStruggle,
#PediatricRareDisease,
#PhotoOfTheDay,
#PositiveThoughts,
#Rare,
#raredisease,
#RareDiseases,
#selfcare,
#Survivors,
#WhyWeRare,
fibularhemimelia,
pediatrichero
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Meet Kingston! This brave little pediatric hero entered the world on July 24th, 2019 weighing 1 pound and 13 ounces. Kingston was born as a preemie...
Posted in
#BeKindAlways,
#CareAboutRare,
#careforrare,
#DadApproved,
#DoWhatYouLove,
#EveryDayIsAGift,
#FindACure,
#GiveBack,
#globalgenes,
#Heroes,
#InspiringStory,
#LetNothingStopYou,
#LoveLife,
#MomApproved,
#OvercomeStruggle,
#PediatricRareDisease,
#PhotoOfTheDay,
#PositiveThoughts,
#Rare,
#raredisease,
#RareDiseases,
#selfcare,
#Survivors,
childhero,
hero,
preemie,
preemiebaby,
preemiehero
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Words from @melissac3233 about what resilience means to her family and their daughter Autumn! “@fenrici donates a portion of proceeds towards rare ...
Posted in
#BeKindAlways,
#CareAboutRare,
#careforrare,
#DadApproved,
#DoWhatYouLove,
#EveryDayIsAGift,
#fenricicare,
#FindACure,
#GiveBack,
#globalgenes,
#Heroes,
#InspiringStory,
#LetNothingStopYou,
#LoveLife,
#MomApproved,
#OvercomeStruggle,
#PediatricRareDisease,
#PhotoOfTheDay,
#PositiveThoughts,
#Rare,
#raredisease,
#RareDiseases,
#selfcare,
#Survivors
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“Resilience is strength, no matter what obstacles try to stand in your way, you push through them no matter how difficult they may seem. In the end...
Posted in
#BeKindAlways,
#CareAboutRare,
#careforrare,
#DadApproved,
#DoWhatYouLove,
#EveryDayIsAGift,
#fenricicare,
#FindACure,
#GiveBack,
#globalgenes,
#Heroes,
#InspiringStory,
#LetNothingStopYou,
#LoveLife,
#MomApproved,
#OvercomeStruggle,
#PediatricRareDisease,
#PhotoOfTheDay,
#PositiveThoughts,
#Rare,
#raredisease,
#RareDiseases,
#selfcare,
#Survivors
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