Heroes Who Inspire All of Us - Fenrici Blogs – Tagged "#careforrare"

Jackson - Osteogenesis Imperfecta Pediatric Hero!

June 29, 2020

Jackson - Osteogenesis Imperfecta Pediatric Hero!

This little pediatric hero is Jackson! Jackson was born in March and was diagnosed before birth with, “ … a unique mutation on the COL1A1 gene whic...

Posted in #AmazonDeals, #BackToSchool, #BeKindAlways, #CareAboutRare, #careforrare, #DadApproved, #DoWhatYouLove, #encouraged, #EveryDayIsAGift, #Fenrici, #fenricicare, #FindACure, #GiveBack, #globalgenes, #Heroes, #InspiringStory, #LetNothingStopYou, #LoveLife, #MomApproved, #osteogenesisimperfecta #pandemicpregnancy #covid19, #OvercomeStruggle, #PediatricRareDisease, #PositiveThoughts, #Survivors, #WhyWeRare, childhero, hero

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Garrin - Trach Pediatric Hero!

June 10, 2020

Meet pediatric hero, Garrin! When Garrin was born, he spent five months in the NICU. Garrin was admitted to a Children’s Hospital and Medical Cente...

Posted in #BeKindAlways, #CareAboutRare, #careforrare, #DadApproved, #DoWhatYouLove, #EveryDayIsAGift, #fenricicare, #FindACure, #GiveBack, #globalgenes, #Heroes, #InspiringStory, #LetNothingStopYou, #LoveLife, #MomApproved, #OvercomeStruggle, #PediatricRareDisease, #PhotoOfTheDay, #PositiveThoughts, #Rare, #raredisease, #RareDiseases, #selfcare, #Survivors, #trach, #trachbaby, #trachlife, #WhyWeRare

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Penny - Pediatric Hero with Fibular Hemimelia

June 3, 2020

Penny - Pediatric Hero with Fibular Hemimelia

This is Penny! Penny is a pediatric hero with fibular hemimelia. Fibular hemimelia is a rare disorder that occurs in only 1 in 40,000 births where ...

Posted in #BeKindAlways, #CareAboutRare, #careforrare, #DadApproved, #DoWhatYouLove, #EveryDayIsAGift, #fenricicare, #FindACure, #GiveBack, #globalgenes, #Heroes, #InspiringStory, #LetNothingStopYou, #LoveLife, #MomApproved, #OvercomeStruggle, #PediatricRareDisease, #PhotoOfTheDay, #PositiveThoughts, #Rare, #raredisease, #RareDiseases, #selfcare, #Survivors, #WhyWeRare, fibularhemimelia, pediatrichero

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Kingston - Preemie Hero!

May 29, 2020

Meet Kingston! This brave little pediatric hero entered the world on July 24th, 2019 weighing 1 pound and 13 ounces. Kingston was born as a preemie...

Posted in #BeKindAlways, #CareAboutRare, #careforrare, #DadApproved, #DoWhatYouLove, #EveryDayIsAGift, #FindACure, #GiveBack, #globalgenes, #Heroes, #InspiringStory, #LetNothingStopYou, #LoveLife, #MomApproved, #OvercomeStruggle, #PediatricRareDisease, #PhotoOfTheDay, #PositiveThoughts, #Rare, #raredisease, #RareDiseases, #selfcare, #Survivors, childhero, hero, preemie, preemiebaby, preemiehero

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Resilience Means.... From Pediatric Rare Disease Hero, Autumn, and Her Family

August 28, 2019

Resilience Means.... From Pediatric Rare Disease Hero, Autumn, and Her Family

Words from @melissac3233 about what resilience means to her family and their daughter Autumn! “@fenrici donates a portion of proceeds towards rare ...

Posted in #BeKindAlways, #CareAboutRare, #careforrare, #DadApproved, #DoWhatYouLove, #EveryDayIsAGift, #fenricicare, #FindACure, #GiveBack, #globalgenes, #Heroes, #InspiringStory, #LetNothingStopYou, #LoveLife, #MomApproved, #OvercomeStruggle, #PediatricRareDisease, #PhotoOfTheDay, #PositiveThoughts, #Rare, #raredisease, #RareDiseases, #selfcare, #Survivors

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Resilience is... From Pfeiffer Syndrome Hero Halle and Family

August 5, 2019

Resilience is... From Pfeiffer Syndrome Hero Halle and Family

“Resilience is strength, no matter what obstacles try to stand in your way, you push through them no matter how difficult they may seem. In the end...

Posted in #BeKindAlways, #CareAboutRare, #careforrare, #DadApproved, #DoWhatYouLove, #EveryDayIsAGift, #fenricicare, #FindACure, #GiveBack, #globalgenes, #Heroes, #InspiringStory, #LetNothingStopYou, #LoveLife, #MomApproved, #OvercomeStruggle, #PediatricRareDisease, #PhotoOfTheDay, #PositiveThoughts, #Rare, #raredisease, #RareDiseases, #selfcare, #Survivors

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