Heroes Who Inspire All of Us - Fenrici Blogs – Tagged "#Rare"

Garrin - Trach Pediatric Hero!

June 10, 2020

Meet pediatric hero, Garrin! When Garrin was born, he spent five months in the NICU. Garrin was admitted to a Children’s Hospital and Medical Cente...

Posted in #BeKindAlways, #CareAboutRare, #careforrare, #DadApproved, #DoWhatYouLove, #EveryDayIsAGift, #fenricicare, #FindACure, #GiveBack, #globalgenes, #Heroes, #InspiringStory, #LetNothingStopYou, #LoveLife, #MomApproved, #OvercomeStruggle, #PediatricRareDisease, #PhotoOfTheDay, #PositiveThoughts, #Rare, #raredisease, #RareDiseases, #selfcare, #Survivors, #trach, #trachbaby, #trachlife, #WhyWeRare

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Penny - Pediatric Hero with Fibular Hemimelia

June 3, 2020

Penny - Pediatric Hero with Fibular Hemimelia

This is Penny! Penny is a pediatric hero with fibular hemimelia. Fibular hemimelia is a rare disorder that occurs in only 1 in 40,000 births where ...

Posted in #BeKindAlways, #CareAboutRare, #careforrare, #DadApproved, #DoWhatYouLove, #EveryDayIsAGift, #fenricicare, #FindACure, #GiveBack, #globalgenes, #Heroes, #InspiringStory, #LetNothingStopYou, #LoveLife, #MomApproved, #OvercomeStruggle, #PediatricRareDisease, #PhotoOfTheDay, #PositiveThoughts, #Rare, #raredisease, #RareDiseases, #selfcare, #Survivors, #WhyWeRare, fibularhemimelia, pediatrichero

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Kingston - Preemie Hero!

May 29, 2020

Meet Kingston! This brave little pediatric hero entered the world on July 24th, 2019 weighing 1 pound and 13 ounces. Kingston was born as a preemie...

Posted in #BeKindAlways, #CareAboutRare, #careforrare, #DadApproved, #DoWhatYouLove, #EveryDayIsAGift, #FindACure, #GiveBack, #globalgenes, #Heroes, #InspiringStory, #LetNothingStopYou, #LoveLife, #MomApproved, #OvercomeStruggle, #PediatricRareDisease, #PhotoOfTheDay, #PositiveThoughts, #Rare, #raredisease, #RareDiseases, #selfcare, #Survivors, childhero, hero, preemie, preemiebaby, preemiehero

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Fenrici Story of Resilience: Fatima Has Success With IVF

October 7, 2019

Fenrici Story of Resilience: Fatima Has Success With IVF

“My name is Fatima, I would like to share my story of resilience. After years of hoping to have a child naturally my husband Jaycee and I decided t...

Posted in #BackToSchool, #BeKindAlways, #CareAboutRare, #DadApproved, #DoWhatYouLove, #EveryDayIsAGift, #FindACure, #GiveBack, #Heroes, #InspiringStory, #LetNothingStopYou, #LoveLife, #MomApproved, #OvercomeStruggle, #PediatricRareDisease, #PhotoOfTheDay, #PositiveThoughts, #Rare, #RareDiseases, #Survivors

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Resilience Means.... From Pediatric Rare Disease Hero, Autumn, and Her Family

August 28, 2019

Resilience Means.... From Pediatric Rare Disease Hero, Autumn, and Her Family

Words from @melissac3233 about what resilience means to her family and their daughter Autumn! “@fenrici donates a portion of proceeds towards rare ...

Posted in #BeKindAlways, #CareAboutRare, #careforrare, #DadApproved, #DoWhatYouLove, #EveryDayIsAGift, #fenricicare, #FindACure, #GiveBack, #globalgenes, #Heroes, #InspiringStory, #LetNothingStopYou, #LoveLife, #MomApproved, #OvercomeStruggle, #PediatricRareDisease, #PhotoOfTheDay, #PositiveThoughts, #Rare, #raredisease, #RareDiseases, #selfcare, #Survivors

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Resilence is... From Preemie Hero Lily and Family

August 16, 2019

Resilence is... From Preemie Hero Lily and Family

“Resilience is overcoming the odds stacked against you. Hearing “no”, pushing through, and coming out stronger on the other side. ❤️”- words of res...

Posted in #CareAboutRare, #DadApproved, #DoWhatYouLove, #EveryDayIsAGift, #FindACure, #GiveBack, #globalgenes, #Heroes, #InspiringStory, #LetNothingStopYou, #LoveLife, #MomApproved, #OvercomeStruggle, #PediatricRareDisease, #PhotoOfTheDay, #PositiveThoughts, #Rare, #raredisease, #RareDiseases, #selfcare

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Resilience is... From Pfeiffer Syndrome Hero Halle and Family

August 5, 2019

Resilience is... From Pfeiffer Syndrome Hero Halle and Family

“Resilience is strength, no matter what obstacles try to stand in your way, you push through them no matter how difficult they may seem. In the end...

Posted in #BeKindAlways, #CareAboutRare, #careforrare, #DadApproved, #DoWhatYouLove, #EveryDayIsAGift, #fenricicare, #FindACure, #GiveBack, #globalgenes, #Heroes, #InspiringStory, #LetNothingStopYou, #LoveLife, #MomApproved, #OvercomeStruggle, #PediatricRareDisease, #PhotoOfTheDay, #PositiveThoughts, #Rare, #raredisease, #RareDiseases, #selfcare, #Survivors

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Mattie J.T Stepanek a Poet, a Hero, and So Much More

July 2, 2019

Mattie J.T Stepanek a Poet, a Hero, and So Much More

"In believable, achievable, and understandable ways, his messages remind us that hope is real, that peace is possible, and that life is worthy" 13...

Posted in #BeKindAlways, #CareAboutRare, #DadApproved, #DoWhatYouLove, #EveryDayIsAGift, #FindACure, #GiveBack, #globalgenes, #Heroes, #InspiringStory, #LetNothingStopYou, #LoveLife, #MomApproved, #OvercomeStruggle, #PediatricRareDisease, #PhotoOfTheDay, #PositiveThoughts, #Rare, #raredisease, #RareDiseases, #selfcare

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