Heroes Who Inspire All of Us - Fenrici Blogs – Tagged "#WhyWeRare"

Jackson - Osteogenesis Imperfecta Pediatric Hero!

June 29, 2020

Jackson - Osteogenesis Imperfecta Pediatric Hero!

This little pediatric hero is Jackson! Jackson was born in March and was diagnosed before birth with, “ … a unique mutation on the COL1A1 gene whic...

Posted in #AmazonDeals, #BackToSchool, #BeKindAlways, #CareAboutRare, #careforrare, #DadApproved, #DoWhatYouLove, #encouraged, #EveryDayIsAGift, #Fenrici, #fenricicare, #FindACure, #GiveBack, #globalgenes, #Heroes, #InspiringStory, #LetNothingStopYou, #LoveLife, #MomApproved, #osteogenesisimperfecta #pandemicpregnancy #covid19, #OvercomeStruggle, #PediatricRareDisease, #PositiveThoughts, #Survivors, #WhyWeRare, childhero, hero

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Garrin - Trach Pediatric Hero!

June 10, 2020

Meet pediatric hero, Garrin! When Garrin was born, he spent five months in the NICU. Garrin was admitted to a Children’s Hospital and Medical Cente...

Posted in #BeKindAlways, #CareAboutRare, #careforrare, #DadApproved, #DoWhatYouLove, #EveryDayIsAGift, #fenricicare, #FindACure, #GiveBack, #globalgenes, #Heroes, #InspiringStory, #LetNothingStopYou, #LoveLife, #MomApproved, #OvercomeStruggle, #PediatricRareDisease, #PhotoOfTheDay, #PositiveThoughts, #Rare, #raredisease, #RareDiseases, #selfcare, #Survivors, #trach, #trachbaby, #trachlife, #WhyWeRare

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Penny - Pediatric Hero with Fibular Hemimelia

June 3, 2020

Penny - Pediatric Hero with Fibular Hemimelia

This is Penny! Penny is a pediatric hero with fibular hemimelia. Fibular hemimelia is a rare disorder that occurs in only 1 in 40,000 births where ...

Posted in #BeKindAlways, #CareAboutRare, #careforrare, #DadApproved, #DoWhatYouLove, #EveryDayIsAGift, #fenricicare, #FindACure, #GiveBack, #globalgenes, #Heroes, #InspiringStory, #LetNothingStopYou, #LoveLife, #MomApproved, #OvercomeStruggle, #PediatricRareDisease, #PhotoOfTheDay, #PositiveThoughts, #Rare, #raredisease, #RareDiseases, #selfcare, #Survivors, #WhyWeRare, fibularhemimelia, pediatrichero

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