From the day Brandon was born he overcame challenges. He entered this world at 24 weeks weighing only 1 pound and 10 ounces. He was the only surviving triplet born at 24 weeks. His parents, Chris and Sherri call him their “miracle and hero”. Brandon remains strong, caring, smart and funny even while facing the challenges of cerebral palsy, autism and visual impairment. Now at the age of 19 Brandon faces an additional challenge. He has been diagnosed with MDS with a chromosome 7q deletion. He will be undergoing a stem cell transplant in June to overcome MDS and the chromosome 7q deletion for good. Please follow Brandon’s story on Facebook “Brandon – our hero.”
Emily now 9 years old had a bone marrow transplant in 2016. She was diagnosed with MDS, Monosomy 7 and Refractory Anemia with excess blasts. Statistics say only 4 in 1 million children are diagnosed with MDS a year. MDS is most commonly seen in older adult men. The only known cure for Emily’s condition is a bone marrow transplant. The family was blessed to have a matching sibling donor. Today Emily is doing well.
On the day Ramiro learned he made his middle school soccer team he and his family were informed of abnormal blood work. He underwent several bone marrow biopsies at the age of 13 revealing he had pediatric MDS and Monosomy 7. Chemo and a bone marrow transplant were the only treatment options available. He was told that he wouldn’t be able to attend school, play soccer nor attend any public place for one year. With only a 25% chance of a sibling match, Ramiro’s sister was found to be a perfect matching donor. Ramiro was determined to not allow MDS nor his treatment keep him from playing soccer and graduating high school with his class. Everyday he met with his tutor in the hospital and walked the halls of the stem cell unit to keep his body strong. Ramiro was back on the soccer field, 5 months after his bone marrow transplant. Today he is happy, healthy and excited to be graduating with his high school class in June.