Heroes Who Inspire All of Us

Pediatric hero Asher was born in March of 2019. Asher was born with HLHS, Hypoplastic Left Heart Syndrome which is a birth defect that affects normal blood flow through the heart. HLHS occurs in about 1 in every 5,000 births. Asher is currently waiting for a heart! He and his family have spent a year in the hospital, but they don’t give up hope for Asher and we commend them and Asher’s strength. Asher has been through a lot of ups and downs but continues to pull through and show his sweet face through everything! We ask you to pray for Asher, his family and his new heart he must receive. Pediatric heroes go through several battles, but so do their families that are there alongside them. Follow Asher on his inspirational journey! We are praying for you and your new heart, Asher. Thank you to Asher’s mom, Emma, for allowing us to share a bit of his inspiring and courageous story. @emmasorrels

This is Penny! Penny is a pediatric hero with fibular hemimelia. Fibular hemimelia is a rare disorder that occurs in only 1 in 40,000 births where part or all of the fibular bone is missing. It was a difficult decision on what to do with Penny’s leg but the family ultimately decided to amputate it, “... to give her the best conditions to live a life without pain and limitations”, as told by Penny’s mom, Angelica. A brave and hard decision to make but Penny is sporting her cute and colorful cast with a smile on her face! Penny is able to engage in activities and continue on with her life without limitations! Penny meets with other kids who have had amputations and shows them that they have a friend in this. Our pediatric heroes show that despite a battle they may be fighting or have overcome, it doesn’t have to stop you from living your life and doing so with a smile! Thank you Penny and family for allowing us to share your great story and inspire others.

Meet Briella and her sweet puppy Mieka! Briella is a Cerebral Palsy WARRIOR. Cerebral Palsy is a disorder that occurs in the early stages of life and affects muscle tone, movement, and motor skills. What is shown through the pictures of Briella, is the idea of “CAN”! She CAN do a multitude of things regardless of Cerebral Palsy, and she does it with a smile on her face! Thank you Briella for being an inspiring voice to other heroes who also have Cerebral Palsy!

We celebrate rare diseases and disorders every day. Here is a shout out to some of our heroes we’ve had the privilege of featuring on our page. We are rooting for you and have you in our hearts every day.

“My name is Fatima, I would like to share my story of resilience. After years of hoping to have a child naturally my husband Jaycee and I decided to finally seek out for help. Unfortunately at the young age of 26, I was diagnosed with low ovarian reserve, basically, I have low egg supply and only had a 5% chance of natural conception. This news devastated us and the only option to have a child naturally would be through In vitro fertilization (IVF) with only a 50 percent chance of success. After many tears and prayers later we decided to take that risk and try IVF and with the grace of God and science, we welcomed my son Cristiano at 4lb 14oz born 10-14-2014 who’s is currently 4! I can’t imagine my life without him. He completes our family. We are so lucky and blessed to have our little dude.” An amazing story of resilience told by @fatimamagg! We hope to inspire and encourage all of those who are battling any type of battle! Fenrici salutes your amazing perseverance and bravery!