Pediatric hero Asher was born in March of 2019. Asher was born with HLHS, Hypoplastic Left Heart Syndrome which is a birth defect that affects normal blood flow through the heart. HLHS occurs in about 1 in every 5,000 births. Asher is currently waiting for a heart! He and his family have spent a year in the hospital, but they don’t give up hope for Asher and we commend them and Asher’s strength. Asher has been through a lot of ups and downs but continues to pull through and show his sweet face through everything! We ask you to pray for Asher, his family and his new heart he must receive. Pediatric heroes go through several battles, but so do their families that are there alongside them. Follow Asher on his inspirational journey! We are praying for you and your new heart, Asher. Thank you to Asher’s mom, Emma, for allowing us to share a bit of his inspiring and courageous story. @emmasorrels
This little pediatric hero is Jackson! Jackson was born in March and was diagnosed before birth with, “ … a unique mutation on the COL1A1 gene which pointed to Osteogenesis Imperfecta” (www.andthestorybegins.com - Jackson’s mother’s blog). Osteogenesis Imperfecta are genetic disorders that mainly affect the bones making them more prone to fracture. OI occurs in approximately 1 in 20,000 individuals and can be diagnosed after the birth. Fast forward to Jackson’s birth - he was delivered by c-section and was reported to be stable and breathing well on oxygen. Jackson was a miracle baby… and delivered in the midst of a pandemic! A lot of faith and hope goes into pregnancy, especially when things don’t always go as planned. Abby and her family remained hopeful and took Jackson’s pediatric battle by storm. We are very thankful that Jackson was able to be delivered safely and is continuing to be a pediatric hero! We hope this story can inspire other moms experiencing pregnancy right now during CoVid as well as moms who may have pediatric battles. Fenrici is praying for the safety of our pediatric heroes, and we appreciate you! Thank you Abby for allowing us to share Jackson’s story. Read more stories like Jackson's at our Amazon Store Hero Page: https://amzn.to/31onwhm
This is Penny! Penny is a pediatric hero with fibular hemimelia. Fibular hemimelia is a rare disorder that occurs in only 1 in 40,000 births where part or all of the fibular bone is missing. It was a difficult decision on what to do with Penny’s leg but the family ultimately decided to amputate it, “... to give her the best conditions to live a life without pain and limitations”, as told by Penny’s mom, Angelica. A brave and hard decision to make but Penny is sporting her cute and colorful cast with a smile on her face! Penny is able to engage in activities and continue on with her life without limitations! Penny meets with other kids who have had amputations and shows them that they have a friend in this. Our pediatric heroes show that despite a battle they may be fighting or have overcome, it doesn’t have to stop you from living your life and doing so with a smile! Thank you Penny and family for allowing us to share your great story and inspire others.
Meet Briella and her sweet puppy Mieka! Briella is a Cerebral Palsy WARRIOR. Cerebral Palsy is a disorder that occurs in the early stages of life and affects muscle tone, movement, and motor skills. What is shown through the pictures of Briella, is the idea of “CAN”! She CAN do a multitude of things regardless of Cerebral Palsy, and she does it with a smile on her face! Thank you Briella for being an inspiring voice to other heroes who also have Cerebral Palsy!
We celebrate rare diseases and disorders every day. Here is a shout out to some of our heroes we’ve had the privilege of featuring on our page. We are rooting for you and have you in our hearts every day.