A vest for life despite two rare pediatric conditions

Pixie-Rose is a 2 year old twin who has been diagnosed with Myelofibrosis and Myelodysplastic Syndrome. Both conditions are extremely rare in children. Despite Pixie-Rose’s constant leg pain and night sweats she clearly has a vest for life. You can find Pixie-Rose exploring or creating mischief. She will have great bursts of energy but quickly crashes out due to the rare pediatric diseases she is fighting. Pixie-Rose will be preparing for a bone marrow transplant which is the only treatment option available. Her twin sister Presley-Pearl is her matching donor and hero! You can follow Pixie- Rose’s progress on her Facebook page www.facebook.com/pg/PixiesProgress