Free Expedited Shipping On All Orders!
0 Cart
Added to Cart
    You have items in your cart
    You have 1 item in your cart
      Total

      Resilience Means.... From Pediatric Rare Disease Hero, Autumn, and Her Family

      Resilience Means.... From Pediatric Rare Disease Hero, Autumn, and Her Family

      Words from @melissac3233 about what resilience means to her family and their daughter Autumn! “@fenrici donates a portion of proceeds towards rare genetic diseases research and education.
      Hello, Meet my daughter Autumn 😊 She has 10 rare genetic diseases. 7 are still pending research and information.
      However, The 2 top major ones are MELAS Disease- Non treatable & curable. Progressive as well. We are unsure how she will progress through this disease as results are still pending on her true % for the disease. The next 1 is SPTAN1, Autumn is the 10 known person in the world to carry this rare seizure disorder. The minor 1 is 1Q21.1 microduplication. Variable in symptoms. To date Autumns symptoms from all diseases combined are Seizures, ADHD, Tremors, lazy eye, very mild hearing loss, muscle weakness from the waist down, some muscles are non functioning (muscles in the ears and intestines) She takes daily medication and often is in pain. You’d never know it meeting her or even just looking at her. She’s so witty, kind, has a big heart, and very generous. Thank you @fenrici for the appreciated continued efforts to support rare genetic diseases and for sending my little girl such an awesome backpack! It’s so roomy and has a lot of storage to store all goodies she needs for either school or even long hospital stays! 👏🥰🥰🥰😘😍” thank you for sharing this story of resilience! We are happy our Fenrici backpack is able to accommodate your needs and even more happy we were able to share your story to inspire other heroes!

      Resilence is... From Preemie Hero Lily and Family

      Resilence is... From Preemie Hero Lily and Family

      “Resilience is overcoming the odds stacked against you. Hearing “no”, pushing through, and coming out stronger on the other side. ❤️”- words of resilience from @lilyslittlelungs! Strength and resilience go hand in hand, and we are happy Lily encompasses that! “Resilience is overcoming the odds stacked against you. Hearing “no”, pushing through, and coming out stronger on the other side. ❤️”- words of resilience from @lilyslittlelungs! Strength and resilience go hand in hand, and we are happy Lily encompasses that! “Resilience is overcoming the odds stacked against you. Hearing “no”, pushing through, and coming out stronger on the other side. ❤️”- words of resilience from @lilyslittlelungs! Strength and resilience go hand in hand, and we are happy Lily encompasses that!

      Resilience is... From Pfeiffer Syndrome Hero Halle and Family

      Resilience is... From Pfeiffer Syndrome Hero Halle and Family

      “Resilience is strength, no matter what obstacles try to stand in your way, you push through them no matter how difficult they may seem. In the end you will always come out stronger.” - words of resilience from @_hallemarie_ ! Let this resilience message inspire you today.“Resilience is strength, no matter what obstacles try to stand in your way, you push through them no matter how difficult they may seem. In the end you will always come out stronger.” - words of resilience from @_hallemarie_ ! Let this resilience message inspire you today.“Resilience is strength, no matter what obstacles try to stand in your way, you push through them no matter how difficult they may seem. In the end you will always come out stronger.” - words of resilience from @_hallemarie_ ! Let this resilience message inspire you today.

      Mattie J.T Stepanek a Poet, a Hero, and So Much More

      Mattie J.T Stepanek a Poet, a Hero, and So Much More

      "In believable, achievable, and understandable ways, his messages remind us that hope is real, that peace is possible, and that life is worthy" 13-year-old poet and inspiration, Mattie.

      Mattie was one of four siblings that were all claimed by a rare neuromuscular disease at a young age. However, he did not let his disease emotionally "claim" him as he spoke to thousands of people, sharing messages of hope and peace and advocating for improved hospice laws. He wrote several New York Times bestselling books and was featured on many talk shows. The timeline goes on of incredible feats that Mattie accomplished before passing the messages onto his mom, and eventually passing on.

      He leaves his legacy and inspiration, and leaves us with resilience. Those claimed by pediatric rare disease need more time, we hope someday we can help give it to them with every donation.

      >